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Author Topic: MLC Monster Neurology and MLC

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MLC Monster Re: Neurology and MLC
#80: January 30, 2017, 10:02:48 PM
Anjae-Don't jump to any conclusions that we don't read the articles. In fact, I read all the articles from RCR and HB 7 months before I ever posted here, and read them over and over and over again in the meantime. I knew this forum existed but I had no interest in posting or even reading here until I knew that brain aspects were being discussed. I did not come here to discuss my own story specifically. I did not come here looking for support. Knowing that this may be a chemical imbalance or whatever is far more helpful toward me handling this situation than others cheering me on.

Comparing the personal experiences of multiple MLCers is the first step that one has to take if one wants to do brain research. Because first of all, one has to come up with a definition of the behaviors common to MLC. If we stick to one thread, one person, no discussion, no comparison, we will never reach that point If one person says I see shark eyes, and ten others jump in and say they see shark eyes, then that is something to investigate. If people are supposed to stick to their own threads to discuss shark eyes, it becomes a lot harder to compile information that could be useful in that regard. And the thread you pointed us to describes the eyes as a window to the soul, the change in the eyes as an indicator of guilt and shame. No discussion of the physiological aspect

Once you have a definition of the symptoms that seem to manifest themselves together in midlife crisis, only then can you start to speculate what parts of the brain are involved, based on what is already known about those parts of the brain. As I pointed out, HB pretty much described externally oriented thinking to a T but she called it projection. And to be perfectly honest, all her comments about getting revelations from God would turn off a lot of scientists even though I have to admit I doubt she is getting guidance from God but nevertheless she has managed to come up with a lot of sound interpretations on her own.

And after you define the symptoms in medically sound language, then you can start to design tests to see if your theory is right that something is going on in these parts of the brain.

I find it sad that Velika is feeling compelled to start a discussion forum elsewhere for this topic as here we have a huge number of people that we could draw from to have a good discussion on this topic. However, it might be worthwhile just because that way some sort of scientific rigor could be applied to the discussion, rather than the forum rules rigor. If someone posted an article about new research, then it could be discussed as a thread in its own right rather than merged into a catch-all thread of articles where we aren't allowed to discuss it.

I don't know what has happened to this discussion. It seems it has been pruned or merged or something overnight. And then I go to look at the first post in this new manifestation of the discussion, and what is it? A long personal story. Nothing makes any sense.
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« Last Edit: January 30, 2017, 10:16:13 PM by Changing4Ever »

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Re: Neurology and MLC
#81: January 30, 2017, 10:50:53 PM
Anjae-Don't jump to any conclusions that we don't read the articles. In fact, I read all the articles from RCR and HB 7 months before I ever posted here, and read them over and over and over again in the meantime.

I noticed you have read RCR and HB articles, but not everyone has. But have you read the many discussion threads in the archives and in the main board? If you have, then you know we have been discussing MLC and what may cause it for years.

I did not come here to discuss my own story specifically.

The thing is, HS has rules. You need to have a personal thread. And if you did not come here to discuss your story, why do you post it in other people's threads as well as in science discussion threads? If you are familiar with HB, you must know her board has very strict rules. HS is more flexible, but it does not mean you can do as you please. You cannot be the only person here who does not have a personal story thread and who keeps posting pieces of it on other people's threads.

Plus. we like to know who we are dealing with. We like to know our members story. And you keep trying to not telling us about you. Do you have something to hide?

Comparing the personal experiences of multiple MLCers is the first step that one has to take if one wants to do brain research. Because first of all, one has to come up with a definition of the behaviors common to MLC.

Thank you for informing me of what I, and others, have known and been doing for years. You may not realise but several of us have been around for a while. We are familiar with the many debate threads on the matter of MLC that have existed in HS since its start. We have also been doing just that for years. But, so far, we come to no definitve conclusion.

.And after you define the symptoms in medically sound language, then you can start to design tests to see if your theory is right that something is going on in these parts of the brain.

We know. However, none of us can tests any theory. We do not have brain scans or blood tests.  Each of us may think one thing is going in parts of the MLCer brain, but none of us has a single scan from a MLCer brain while in MLC. Let alone of a good sample of MLCers.

I find it sad that Velika is feeling compelled to start a discussion forum elsewhere for this topic as here we have a huge number of people that we could draw from to have a good discussion on this topic.

This is the new topic. Velika wanted one on the neurobiology of MLC (check her preply #77 on this thread) . We already had one. The posts from the science thread that concerned neurology and MLC were merged into the already existing thread on the matter.

However, it might be worthwhile just because that way some sort of scientific rigor could be applied to the discussion...

You mean, the scientific rigour that was applied on the neuroscience thread, and had been for two previous threads on the matter, until you star filling it with your personal issues and stories? You have not been paying real attention to that thread, have you?

Do you know of any HS discussion thread where only one person's issue is being debated? I don't.

If someone posted an article about new research, then it could be discussed as a thread in its own right rather than merged into a catch-all thread of articles where we aren't allowed to discuss it.

No, we could not. There are tech aspects that are necessay to respect. Otherwise HS does not function. We do not have space for it. And Old Pilot and I cannot keep merging all those separated threads. That is why we have threads on several matters. And everyone is allowed to discuss on the  Links/blogs/articles for us all to share thread. Like I said before, you cannot dictate HS technical conditions and what can, or cannot, be done on that issue.

Old Pilot and I have a lot of work making the board work, and making sure there is enough space for people to be able to post. Also, that the Community board is not to long in order to be easy to read and for us to do tech work.

You, and everyone else, need to respect the tech constrains and HS rules. We have plenty of debate/discussion threads. More than 3 pages of those on the Community Board and some 15 pages on the Archives.

So, now, please, give it a break. HS has been around for years and has its way of doing things in a way that allow the board to exist.

Like I said before, you are not respecting mine and Old Pilot's work and want to do things your way, just because, even if we have our rules and way of doing things in order to have HS running. So, please be so kind to keep with the board's way. Thank you.

I don't know what has happened to this discussion. It seems it has been pruned or merged or something overnight. And then I go to look at the first post in this new manifestation of the discussion, and what is it? A long personal story. Nothing makes any sense.

This is a different thread. It makes perfect sense. The more personal posts from the Neuroscience thread were put here because this thread has a more personal component. So, now, your posts from the other thread fit here.

You may had not notice but this thread is called Neurology and MLC. The other one was called Biochemistry, Neurotransmitters, and Brain Research. It was not a thread about MLC. It was a thread on wider issues pertaining to that thread title, not on MLC. MLC was not on the title of that thread.

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Re: Neurology and MLC
#82: January 30, 2017, 11:20:22 PM
You know, I have a PhD and other degrees from two universities that consistently rank among the top 10 universities in the world. I have taught at several universities. I can tell you that someone's personal life is not a prerequisite to having a scientific discussion. Yes, I may use my husband as an example but I use others as well. I've talked on these neuroscience threads about symptoms others have witnessed that I have never seen in my husband, but that seem to be otherwise common in other MLCers. As far as I am concerned, my husband is what one might call a case study in scientific terms, as is every other MLCer. Case studies have their place in such discussions.

My hope is that scientists take MLC as a syndrome seriously so that it gets studied. That's my reason for posting and discussing here. Period. it's not about me or even my husband. This thing is so horrible that it is a shame that there is no research going on. So much suffering, and no science being applied. I don't want anyone else to have to go through this, or at least go through it in ignorance of what is going on or thinking their spouses are just @$$holes when maybe there is a reason that has nothing to do with personal choice.

Having a DETACHED conversation about symptoms our husbands suffer without passing any sort of moral or emotional judgment about it seems to be unwelcome. We are supposed to be here to "heal" ourselves whatever that means. It certainly is not being used in a scientific sense.

I was on the fence about Velika starting a new forum but I am leaning more and more that way. This forum is clearly about self-focus and psychological/counseling approaches. There's nothing wrong with that but moving posts around breaks up existing conversations and really that is not helpful. You are free to run the forum as you see fit but I think Velika should be free to leave and start something else.

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« Last Edit: January 30, 2017, 11:24:49 PM by Changing4Ever »

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Re: Neurology and MLC
#83: January 30, 2017, 11:32:48 PM
https://www.merriam-webster.com/dictionary/neurology

Isn't that simply another way of saying "brain research"? And because the other thread title doesn't mention MLC then you say it isn't about MLC, although isn't it by virtue of being on an MLC forum the fact that it is also about MLC is implicit?

Your post moves to me seem to be about splitting hairs.
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Re: Neurology and MLC
#84: January 30, 2017, 11:46:32 PM
https://www.merriam-webster.com/dictionary/neurology

Isn't that simply another way of saying "brain research"? And because the other thread title doesn't mention MLC then you say it isn't about MLC, although isn't it by virtue of being on an MLC forum the fact that it is also about MLC is implicit?

Your post moves to me seem to be about splitting hairs.
I think the point is we try not to have thousands of short discussion threads that more or less ask the same questions.
As admins and moderators we try to keep the board as organised as possible.
It is chaotic in the first place, so this is a tough job.

Really we have very few rules in regards to what you can post or how.

If you find discussion threads in the archives that is on a topic you would like to discuss please ask us and we will be glad to bring it back to the main board.
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Re: Neurology and MLC
#85: January 31, 2017, 03:23:39 AM
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Re: Neurology and MLC
#86: January 31, 2017, 07:00:31 AM
https://www.merriam-webster.com/dictionary/neurology

Isn't that simply another way of saying "brain research"?

No. Neurology and brain research are not the same thing. In fact, Velika wanted Neurology in the title, but Neurology is not brain research. Neurology only applies to things and illnesses in the brain that are already know, like the dementias, or epilepsy, or ALS, or strokes.

There are difference between Neurology, Neuroscience (the research) and Neurobiology (another type of research).

And because the other thread title doesn't mention MLC then you say it isn't about MLC, although isn't it by virtue of being on an MLC forum the fact that it is also about MLC is implicit?

No. We have threads that do not factor MLC, or only in a minor way. The other thread is for all sorts of brain research, motor, strokes, thermoregulation, neurotransmitters, etc.

Your post moves to me seem to be about splitting hairs.

They are not. Like OP said, "It is chaotic in the first place, so this is a tough job". And I would like you to respect it.
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