[Ready2Transform]

Ready2, as you know OldPilot's mother has bipolar and she had a MLC. I think it is imporant for people to understand that having bipolar does not preven one from having MLC.

What will happen is that, once MLC goes away, the bipolar would still be there. But at least there are meds for bipolar/ways of dealing with it.

Thank you for reminding me of that. And that's the underlying thing for me - this is a lifetime of treatment he'll have to choose. It's not different from FTD for anyone suffering that - their only recourse is a plan of action that accepts the diagnosis and goes forward from there. But certainly, life doesn't omit anyone from the possibility of breakdowns whether they have a pre-existing condition or not, unfortunately.

[bvFTD]

Anjae:

This site made it clear to me that I was to be confined to my own little thread. Please allow me to continue should anyone else wish to follow it.

Thank you.

[Velika]

bv has politely qualified her statements. She is not insisting that all HS members spouse have bvFTD. Also she is keeping a polite and courteous tone in this discussion and staying within community guidelines.

[kikki]

If I could make a suggestion bvFTD.  A slight tweak of your approach would make all of the difference. If you would perhaps tell us more of your story and what you and your family experienced and how you navigated everything, other posters can choose to follow along and join in with you.

The LBS here are thoughtful, resourceful people who have the intelligence to make up their own minds about what is a fit for their own situations.  We have all experienced enormous volumes of people telling us what to do and how to do it.  That very rarely works as no one else is walking in our shoes.

Tell us more about you and your story, not about us and our stories.

[bvFTD]

Kikki: "A slight tweak in my approach?"

I am not a marionette.

Take care, LBS.

[kikki]

Respond to that suggestion how you will bvFTD. 
If you genuinely want to be a part of this community, it is a collaborative one. 

[Anjae]

You're welcome, Ready2.

... their only recourse is a plan of action that accepts the diagnosis and goes forward from there. But certainly, life doesn't omit anyone from the possibility of breakdowns whether they have a pre-existing condition or not, unfortunately.

One should be careful with the diagnosis. You know my cousin that had MLC was diagnosed with every mental illnesss in the book and he has none of them. And also how the meds he was given messed him up to the point of him trying to kill himself in despair.

This site made it clear to me that I was to be confined to my own little thread. Please allow me to continue should anyone else wish to follow it.

I didn't prevent you from continue. I don't have that power, that is for mods, OldPilot and RCR. I went to your own previous threads and posted what you have said. Things that you are now denying you said. As for being confined to our threads, that is what we all do when telling our story.

Also, this is not your personal thread. This thread has a green monster icon. It means it is a Thread about MLC Monster. And even if it was your personal thread, people can post on it.

bv has politely qualified her statements. She is not insisting that all HS members spouse have bvFTD. Also she is keeping a polite and courteous tone in this discussion and staying within community guidelines.

Can you read Velika? Have you read the post from bvFTD previous threads? The quoted and marked things are from posts from bvFTD from her own threads. bvFTD is now in fact saying she had not said what she had. Follow her links, read by yourself.

Tell us more about you and your story, not about us and our stories.

I don't think bvFTD wants to do that, Kikki. She only has this threads, and I am not seeing much of her story.

http://mlcforum.theherosspouse.com/index.php?topic=9256.msg606280#msg606280 - "Midlife Crisis" is Brain Disease of the Frontal Lobe

http://mlcforum.theherosspouse.com/index.php?topic=9379.msg615687#msg615687 - Bvftd comments

http://mlcforum.theherosspouse.com/index.php?topic=9383.msg615915#msg615915 - Re: Is this mlc? Having a rough time... - it has only one page and two postas and is archived and locked.

I am not a marionette.

Nor are we.

And yet, you have been trying to shove something down our throats at any cost, going so far as saying you hadn't said things you have.

[Phoenix]

Your assertion is not quite accurate. Neurologists can definitively diagnose ftd before death. I think what you mean is that they can't determine specific pathology until autopsy: Pick's bodies, TDP, Tau, ALS pathology, PSP, etc. and if they conduct a genetic test they can determine the errant gene such as C9orf.

They can and do diagnose ftd with certainty before death, just not the specific type of ftd. There are many.

It's not my assertion, but rather that of the Association for FTD, the Mayo Clinic and other reputable medical experts. What I provided are direct quotes. From Mayo Clinic, for example: "No single test can identify frontotemporal dementia, so doctors attempt to identify certain characteristic features while excluding other possible causes.The disorder can be especially challenging to diagnose as symptoms of frontotemporal dementia often overlap with those of other conditions."

"The current lack of biomarkers for FTD contributes to diagnostic delays and errors.

That said, no one is debating the existence of FTD nor the tragedy of this progressive terminal illness. I'm deeply sorry that your husband, you and family are going through this, bvFTD.

Kikki makes an important point, however, about the value of each person's story and experience. We are not doctors or therapist for the most part and even if some here are, this is not the place for diagnosing others. I have found the people on this board to be thoughtful and intelligent. If a spouse is exhibiting the psychological and physical symptoms of FTD, or any other disease, and an LBS has any influence with their spouse, they will encourage them to pursue medical assistance. It is, however, our spouse's life and our spouse's decision as to what they want to pursue regarding their own wellbeing. One of the hallmarks of MLC is that our spouse does not want our interference or opinions and may do the opposite just to exert their independence, so it can actually backfire and keep a spouse from getting useful help if we pressure.

Phoenix

[Silver]

Bravo Anjae!

Many members have expressed to both bvFTD and Velika our thoughts and concerns of how this impacts, especially new people who are just trying to find their way through this crisis in their families.

100% agreed.
All said in Anjae's post.

[OldPilot]

Kikki: "A slight tweak in my approach?"

I am not a marionette.

Take care, LBS. I'm

I am sorry you feel that way.

It must be horrible to have no control over this disease and the  reprucussions that result from it.

I know it is a helpless feeling when my Dad got PSP.

I still think that you and everyone else could benefit from the basic advice that we give.

The cause does not always matter and the LBS still must do the same thing.

JMHO.