I probably would have had better luck locating a real live unicorn.
LOL!
I tried a support group for people whose spouse weed having an affair. It was clear to me about half the people there had an MLCer, but they all had their heads shoved up and were convinced of they followed the literature, their wayward spouse would come home. The moderator was absolutely clueless about MLC and shut me down the couple of times I mentioned it. And then months after I never returned they emailed me to see why I stopped coming. If you can be open enough to listen and learn, you aren't being supportive.
Overall, I agree with Neo. I liken MLC to MS (which I have). MS is a difficult disease to dx. Like MLC, there are certai similarities (e.g. Script) that patients will exhibit, but they are not universal. There is no true course for the disease. Some are lucky, like me, and have a very mild case. Others fare far worse, like a friend from HS who died in here 40s because of the awful disease. The medical community doesn't know the cause of MS, but research thinks there are multiple factors that contribute. Many people don't have a clue about MS. Can't tell you. The number of times I've patiently explained they no, I.
not one of Jerry's kids. MLC is similar. Really, how can you help someone who isn't experiencing the insanity understand that this is your reality. MLC defies logic similarly to the way MS does because the presentation is freaking crazy. One minute I can feel physically fine, and the next I'm writing on the floor with tears streaming down my face because my "painless" disease has triggered muscle spasms in my back lasting for hours (and trust me, they freaking hurt!). The man I'm married to will be quiet for awhile then decide to mess with me. Just as I can't predict what the disease is going to do, I can't predict what he is going to do.
I just realized I've lived most of my adult life on a roller coster.
Anyway, as Neo said, a big part of the problem is that the MLCer isn't willing to get the help they need
and since we are dealing with mental health issues, there let is compounded.
Jack, I completely understand what you're saying about empirical evidence; however, someone with the appropriate training could gather quite a bit by visiting forums such as this. It may not be the strongest evidence, but since we are dealing with mental health, it seem to me the best that can be done is to extrapolate information using existing evidence. Medical science is focused on quantitative evidence; however, there are many studies in other disciplines that accept we can learn a significant amount using qualitative data. Phenomenology would be a very appropriate theoretical framework for a study about MLC. The problem is, researchers need to be interested.
Until we get past the Dr. Phil approach to MLC (what a horrible episode!) and really researchers delve deeply into MLC, it's going to remain a stereotypical joke, IMO. Hopefully that time will come.